Childhood Cancer Webinar Series

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The 117th Congress: A Childhood Cancer Policy Preview | FEBRUARY 10, 2021

In this February 2021 webinar, we took a look ahead at the changing policy landscape in Washington, DC, and discussed what a new Congress and Administration may mean for childhood cancer priorities in 2021 and beyond.

We were joined by:
- Sera Alptekin, Legislative Assistant and Correspondent to Representative Jackie Speier (CA-14): Sera's legislative portfolio includes healthcare issues, specifically covering the Congresswoman's work on the Biomedical Research Caucus and the Childhood Cancer Caucus.
- Sue Emmer, Emmer Consulting: Sue is the policy consultant for Children's Cancer Cause.

Elevating the Needs of Childhood Cancer Survivors | OCTOBER 2020

On this webinar focused on childhood cancer survivorship, we were joined by experts sharing new developments and best practices, and we shared some of what our organization is doing to help aid in the forward-momentum of this field.

This free community webinar focused on childhood cancer survivorship featured experts sharing new developments and best practices in this field: - Dr. Maria ...

Mid-Year Childhood Cancer Advocacy Update | JULY 2020

This webinar provided a status report on a variety of legislative initiatives that could have an impact on children with cancer and survivors. We took a look at what needs to happen in the second half of 2020 to get legislation passed before the 116th Congress comes to a close -- and how you can help.

Speakers included Ellyn Miller of Smashing Walnuts Foundation who discussed the Gabriella Kids First 2.0 legislation; Jonathan Daniels of Cystic Fibrosis Foundation who covered expanded paid leave; Janet Demeter of Jack's Angels with an update on the DIPG Awareness Resolution; and our own policy expert Sue Emmer on other timely legislative updates including appropriations.

The Changing Landscape of Pediatric Cancer Drug Development | MARCH 2020

We heard from experts about challenges and opportunities around implementation of the RACE for Children Act and how it will change the landscape of pediatric oncology drug development. This webinar addressed how FDA is structuring its regulations, how researchers are structuring trials, and how industry is adapting. Thank you to our presenters: Dr. Gregory Reaman (OCE, FDA), Dr. Elizabeth Fox (St. Jude), and Dr. Mark Kieran (Bristol-Myers Squibb).

Presenter Slides (PDF) →

SURVIVORSHIP | SEPTEMBER 2019

Childhood cancer advocates, families, researchers, and survivors joined Dr. Greg Aune and Dr. Julia Rowland for a discussion of the challenges around the long-term care of childhood cancer survivors..

MID-YEAR ADVOCACY UPDATE | JUNE 2019

Six months into the 116th Congress, we provide childhood cancer advocates an update on where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care.

Six months into the 116th Congress, we provide childhood cancer advocates an update on where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care.

POST-WORKSHOP UPDATE ON CHEMO-INDUCED HEARING LOSS IN PEDIATRICS | MARCH 2019

The pediatric patient population with chemotherapy-induced hearing loss represents a segment of the cancer survivor community with a severe burden of disease with great unmet medical need. An externally-led, FDA-approved Patient Focused Drug Development (PFDD) meeting was held on September 13, 2018 near Washington, DC to explore these issues in-depth. In this March webinar, we provided an update on progress since that meeting -- and next steps.

The pediatric patient population with chemotherapy-induced hearing loss represents a segment of the cancer survivor community with a severe burden of disease with great unmet medical need. An externally-led, FDA-approved Patient Focused Drug Development (PFDD) meeting was held on September 13, 2018 near Washington, DC to explore these issues in-depth.

HOPE ON THE HORIZON – NEW TREATMENTS FOR CHILDHOOD CANCER | JANUARY 2019

On January 30th, we hosted a webinar about the latest ground-breaking developments in childhood cancer research, with a specific focus on immunotherapy and precision medicine. For highlights, visit this blog post. Full recording:

This Children's Cause webinar featured information about the latest ground-breaking developments in childhood cancer research. We heard from a pediatric oncologist, a CAR-T researcher, and a pharmaceutical representative.

ADVOCACY TOOLS AND TACTICS | JUNE 2018

This webinar was designed for childhood cancer advocates - beginners and experts alike - who want to learn more about effective advocacy practices. We heard from several advocates around the country who've been achieving progress around childhood cancer policy issues. This webinar aims to arm you with creative new ideas and impactful tools to take to your own local legislators or statehouse in pursuit of a brighter future for children with cancer.

This webinar was designed for childhood cancer advocates - beginners and experts alike - who want to learn more about effective advocacy practices. We heard from several advocates around the country who've been achieving progress around childhood cancer policy issues.

NAVIGATING THE CHILDHOOD CANCER JOURNEY | JANUARY 2018

This webinar is for families impacted by childhood cancer who want to be more informed about the resources and support services available to aid in their child's journey, from diagnosis to survivorship.

FINANCIAL ACCESS ISSUES | april 2017

This webinar helped us delve into the issue of financial toxicity, as we start to explore what we as policy advocates can do to work toward effective solutions to lessen the financial burden on families in our community.

April 2017 Advocacy Webinar of the Children's Cause for Cancer Advocacy -- Academic researchers Anne Kirchoff, PhD, MPH, and Kira Bona, MD, MPH, lead a discussion about challenges and opportunities facing childhood cancer advocates in our efforts to decrease financial barriers and expand access to affordable cancer care for families with a child battling cancer.

CHILDHOOD CANCER AND THE TRUMP ADMINISTRATION | december 2016

This webinar previewed the changing policy landscape in Washington, DC and what a new Congress and Administration may mean for childhood cancer in 2017 and beyond:

December 2016 webinar previewing the childhood cancer policy landscape in 2017.