A LONG, HEALTHY LIFE FOR EVERY CHILD WITH CANCER.
The Children’s Cause for Cancer Advocacy (CCCA) is the leading national advocacy organization working to achieve access to less toxic and more effective pediatric cancer therapies; to expand resources for research and specialized care; and to address the unique needs and challenges of childhood cancer survivors and their families.
CCCA leads efforts to ensure that these needs and perspectives of children with cancer are integrated into the highest deliberations on health care and cancer policy at the Federal level.
The Voice of Children with Cancer.
The Children’s Cause for Cancer Advocacy (CCCA), founded in 1999 as The Children’s Cause, Inc., was established to take a leadership role in advocacy and training on national issues affecting childhood cancer.
We act as a catalyst to stimulate pediatric drug discovery and development and to help ensure care for survivors of childhood and adolescent cancer, a population expected to reach 500,000 by 2020.
We work closely with leaders in the National Cancer Institute, the Food and Drug Administration, Congress and the pharmaceutical industry to make a difference in the pace and efficiency of getting new treatments to children. We fill a strategic national gap, by advancing policy and system improvements with a sense of urgency from families and survivors that childhood cancer must be eradicated.
CCCA is dedicated to monitoring, advocating and disseminating information about vital national issues facing children with cancer and their families. CCCA is supported by corporate and foundation grants, and by caring friends and families. Our efforts focus on the day when childhood cancer will no longer be the leading disease killer of our children.
Childhood cancer remains the leading cause of death by disease for our nation’s children, and the health and well being of childhood cancer survivors remains too fragile. The Children’s Cause will continue to press for progress for national policies that can give our children access to the most effective therapies and can normalize their lives as they grow.
We hope you will join us as we work together to reach these goals for each child struggling with cancer.
children in the united states die of cancer every year.
the average cost of every hospital stay for a child with cancer.
the survival rate for some pediatric cancers like dipg.
of childhood cancer survivors suffer from significant long-term health effects.
WE BELIEVE THAT CHILDHOOD CANCER ADVOCATES MUST TAKE ACTION ON THESE TWO MOST IMPORTANT ISSUES:
Therapies better targeted at children’s cancers can increase survival rates and reduce late effects. But developing new therapies for children is not profitable because childhood cancer is a small market.
Children’s Cause advocates for families and survivors with researchers, government officials and pharmaceutical industry leaders to bring safer, more effective drugs to treat children. We ensure that the needs and perspectives of children with cancer are integrated into deliberations on health care and cancer policy in Congress, FDA and NIH.
Two-thirds of childhood cancer survivors suffer from at least one severe health problem from their treatment or disease. Second cancers, heart and lung damage, osteoporosis, financial pressures, school re-integration, employment and infertility are among the challenges survivors face. Many are unaware and unprepared to face a lifetime of impaired health and quality of life.
Children’s Cause empowers survivors and families with educational materials and tools to improve their quality of life and become effective advocates for themselves and for others.