Legislative Action Center - 2019.png

The CLINICAL TREATMENT Act (now H.R. 913) has been reintroduced by Rep. Ben Ray Lujan (NM-3) and Rep. Gus Bilirakis (FL-12). This bill would federally require Medicaid to cover routine costs associated with enrollment in approved clinical trials for those with life threatening conditions.

At least one-third of childhood cancer patients depend on Medicaid coverage for their care. Most children are treated in the context of clinical trials, and their routine care is covered by insurance while the research costs of a trial are covered by a sponsor (most often the National Cancer Institute).  Families would suffer exorbitant expenses for care if Medicaid did not cover routine medical care as children are treated. 

To protect families and children’s care, Children’s Cause supports the Clinical Treatment Act, which would require states’ Medicaid plans to cover these costs.

The ACE Kids Act would improve care for approximately two million children with medical complexities in the Medicaid program. The bill would provide more consistency for children with medical complexity as they often need to travel across state lines for care, which currently results in coverage issues since Medicaid coverage may differ from state to state. We are honored to join the nation’s leading children’s hospitals, along with the Children’s Hospital Association, in supporting this legislation.

The ACE Kids Act works to create a patient-centered, pediatric-focused delivery system for this unique population of children; it is an important step in fixing the current fragmented system for children with complex medical conditions, ensuring ready access to care, and reducing the burden on their families.