Take action on the most pressing childhood cancer policy issues.
ACTION ALERT: Improve Medicaid
Lawmakers have the opportunity to improve care for kids with complex medical conditions by supporting two pieces of legislation currently making their way through Congress: the Accelerating Kids’ Access to Care Act and the Advancing Care for Exceptional Kids Act. We estimate that approximately 1/3 of the nation's children with cancer are covered by Medicaid. Under the current Medicaid system, parents of children with multiple, life-threatening disabilities struggle to coordinate the complex care of their kids.
An Impactful Awareness Month in DC
The childhood cancer community came together for a series of powerful, action-oriented events in September to recognize 2018’s Childhood Cancer Awareness Month. Among the highlights: an Externally-Led Patient Focused Drug Development workshop on chemotherapy-induced hearing loss in pediatrics; Childhood Cancer Summit on Capitol Hill; and CureFest on the National Mall.
Progress Report: The Latest Childhood Cancer News
- Sept. 19: Awareness Month Updates from Washington
- September 13: Chemo-Induced Hearing Loss in Pediatrics Meeting
- August 22: STAR Act Funding Update
recent legislative successes
Giving children with cancer & their families a voice.
We are a strong, clear voice in national debates on research, cancer treatments, healthcare reform and survivorship.
We fight for our children in the highest corridors of power – because someone must.