Our Mission:

A Long, Healthy Life for Every Child with Cancer

 
 
 
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Take action on the most pressing childhood cancer policy issues.

 
 
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ACTION ALERT: Improve Medicaid

Lawmakers have the opportunity to improve care for kids with complex medical conditions by supporting two pieces of legislation currently making their way through Congress: the Accelerating Kids’ Access to Care Act and the Advancing Care for Exceptional Kids Act. We estimate that approximately 1/3 of the nation's children with cancer are covered by Medicaid. Under the current Medicaid system, parents of children with multiple, life-threatening disabilities struggle to coordinate the complex care of their kids.

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An Impactful Awareness Month in DC

The childhood cancer community came together for a series of powerful, action-oriented events in September to recognize 2018’s Childhood Cancer Awareness Month. Among the highlights: an Externally-Led Patient Focused Drug Development workshop on chemotherapy-induced hearing loss in pediatrics; Childhood Cancer Summit on Capitol Hill; and CureFest on the National Mall.

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Progress Report: The Latest Childhood Cancer News

- Sept. 19: Awareness Month Updates from Washington

- September 13: Chemo-Induced Hearing Loss in Pediatrics Meeting

- August 22: STAR Act Funding Update

 
 
 
 
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recent legislative successes

Giving children with cancer & their families a voice.

We are a strong, clear voice in national debates on research, cancer treatments, healthcare reform and survivorship.

We fight for our children in the highest corridors of power – because someone must.

 
 
 
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