Improving Care for Kids on Medicaid

Providing children with complex medical conditions enrolled in Medicaid the best possible care is a national challenge, and the ACE Kids Act will bring us closer to ensuring these vulnerable children receive the care they need.

December 2018 Update: The Advancing Care for Exceptional (ACE) Kids Act PASSED the U.S. House on Tuesday, December 11th, as part of a bipartisan package of healthcare legislation. Now, we push for passage of its companion legislation (S.428) in the Senate before this legislative session comes to a close.


advancing care for exceptional (ACE) kids act:

About this Legislation: The ACE Kids Act would improve care for approximately two million children with medical complexities in the Medicaid program. The bill would provide more consistency for children with medical complexity as they often need to travel across state lines for care, which currently results in coverage issues since Medicaid coverage may differ from state to state. We are honored to join the nation’s leading children’s hospitals, along with the Children’s Hospital Association, in supporting this legislation.

More from CCCA: In September, Children’s Cause signed on to this coalition letter to Congressional leaders supporting the ACE Kids Act. We estimate that approximately 1/3 of the nation's children with cancer are covered by Medicaid. Under the current Medicaid system, parents of children with multiple, life-threatening disabilities struggle to coordinate the complex care of their kids.

The ACE Kids Act works to create a patient-centered, pediatric-focused delivery system for this unique population of children; it is an important step in fixing the current fragmented system for children with complex medical conditions, ensuring ready access to care, and reducing the burden on their families.

Write your Senators about the ACE Kids Act →


We're collecting and sharing healthcare testimonials from childhood cancer families, and we would love to hear from you -- especially if you have experience with coverage under CHIP, Medicaid or the ACA exchanges. Your stories make us much stronger advocates in Washington as we fight for quality, affordable healthcare for our nation's children.

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