dipg awareness week (H.RES.586)

“This Resolution gives hope for the day when... finding solutions to these most deadly cancers is a priority. It finally brings public light to one of the darkest experiences a child can have.”
— Janet Demeter, Founder of Jack's Angels

ACTION ALERT:  Join us in asking Congress to establish the fourth week in May as national DIPG Awareness Week

  • Diffuse Intrinsic Pontine Glioma, or DIPG, is the leading cause of childhood brain tumor deaths. Every year, 200-400 children in the U.S. will be diagnosed with DIPG and most of them will live less than a year after diagnosis. 
  • This House resolution designating a DIPG Awareness Week would help spread awareness about this deadly disease and support researchers in their efforts to find new therapies to treat DIPG. Full Text of Legislation

This resolution is a result of the passionate advocacy by Janet Demeter, who lost her son Jack to DIPG in 2012. After Jack's death, Janet founded Jack's Angels Foundation to increase DIPG awareness and research.

Fill out the form on this page so your Congressman knows you share in Janet's passion about finding cures to save these children.