Sign-On Letters

Policy Letters Endorsed by CCCA during the 112th Congress

Letters to Congress:

• Community letter, led by CCCA:  Urging Policymakers to Prevent Sequestration, by outlining the impact funding cuts would have on childhood cancer research (November 19, 2012)
• Cancer Leadership Council: Commenting on Prescription Drug Track-and-Trace Legislation (November 7, 2012)
• Cancer Leadership Council:  Supporting Provisions to Improve Pediatric Cancer Research, in the final version of the FDASIA legislation as it relates to BPCA/PREA (June 15, 2012)
• Alliance for Childhood Cancer:  Supporting a Public Meeting on Pediatric Cancers, as part of the informal conference resolving differences in the House and Senate versions of FDASIA (June 14, 2012)
• Alliance for Childhood Cancer:  Supporting Strengthening BPCA/PREA (April 12, 2012)
• Community letter:  Supporting an Extension of the Therapeutic Discovery Project Tax Credit, a credit to encourage investment in new therapies to prevent, diagnose, and treat acute and chronic diseases (December 14, 2011)
• Community letter:  Requesting the Establishment of the National Center for Advancing Translational Sciences - House Letter, Senate Letter (July 29, 2011)
• Community letter:  Requesting Continuing Support for the Children's Hospitals Graduate Medical Education (CHGME) Program - House Letter, Senate Letter (July 29, 2011)
• Community letter: Requesting Continued Support for the Congressionally Directed Medical Research Programs (CDMRP) in the 2012 Defense Appropriations Act (June 8, 2011) 
• Cancer Leadership Council:  Urging Congress Not to Reduce Funding for the NIH and NCI (April 6, 2011)
• Community letter: Requesting Funding for the Cures Acceleration Network (February 16, 2011)

Letters to Agencies:

• Children's Cause for Cancer Advocacy:  Commenting on the Standards Related to Essential Health Benefits, including recommendations to modify proposed regulations (December 26, 2012)
• Cancer Leadership Council: Urging the Release of Draft Guidance on Laboratory-Developed Tests(November 21, 2012)
• CCCA:  Recommendations to Pediatric Subcommittee of ODAC on Provisions of FDASIA to Benefit Children with Cancer (November 19, 2012)
• Alliance for Childhood Cancer:  Applauding the FDA for Considering Pediatric Cancer in the Patient-Focused Drug Development Initiative (November 1, 2012)
• Cancer Leadership Council: Commenting on the Proposed Rule on the Summary of Benefits and Coverage and the Uniform Glossary and the accompanying templates, instructions, and related materials (October 21, 2011)
• CCCA:  Supporting the establishment of the National Center for Advancing Translational Sciences (February 3, 2011)

Policy Letters Endorsed by CCCA in the 111th Congress:

• Prescription Drug User Fee Act:  Letter outlining topics of interest for PDUFA reauthorization.
• Children's Cause for Cancer Advocacy:  Comments regarding dependent coverage of children to age 26 (August 11, 2010 - Letter to the Office of Consumer Information and Insurance Oversight, Department of Health and Human Services)
• Cures Acceleration Network: Request for FY2011 funds to finance the Cures Acceleration Network (June 23, 2010 - Letter to Senator Tom Harkin, Senator Thad Cochran, Representative David Obey, Representative Todd Tiahrt)
• Raise the Cap Coalition: Request for enforcement of the elimination of lifetime caps by insurers as part of the Patient Protection and Affordable Care Act (PPACA) (May 7, 2010 - Letter to Hon. Kathleen Sebelius, Secretary of the Department of Health and Human Services) 
• Children's Cause for Cancer Advocacy: Support for the Family Smoking Prevention and Tobacco Control Act (May 18, 2009 - Letter to Sen. Ted Kennedy, sponsor of the legislation)