Programs

CCCA Advocacy Workshop

Helping Survivors Make a Difference Through Advocacy

A core component of our Rise To Action conferences is an advocacy session that aims to empower young adult survivors to make a difference by telling their story to people in power. We have adapted this "advocacy bootcamp" to fit a variety of formats and audiences, and we are taking it on the road!

 

In 2009, our advocacy roadshow traveled to Camp Mak-a-Dream in Montana and a survivorship conference in Dallas. In April 2010, our Survivors' Lobby Day in Washington, D.C. was a huge success for the third year in a row!

 

The interactive session aims to engage and challenge survivors around the central question: "What does advocacy mean to me?" We explore why survivors should get involved with cancer advocacy and how to maximize the success of those efforts through effective messaging. Our presentation familiarizes survivors with the federal legislative and appropriations process, as well as current cancer advocacy issues, with the objective of helping survivors brainstorm specific projects they can take back to their hometowns and build upon. 

 

From a small group of survivors in Montana to a large group fanning out across Congressional offices on Capitol Hill, the goals are the same:  educating, connecting, empowering.

 

If you are interested in bringing Rise To The Challenge to your city or attending an upcoming workshop, please contact Lori at lsalley@childrenscause.org.

The Virtual Pediatric Oncology Drug (vPOD) Enterprise

vPOD will be an independent, sustainable entity to drive a rational, efficient and more rapid process for developing novel pediatric cancer therapeutics.

Survivorship Resources

  Late Effects and Follow-Up Care

      Physical Late Effects

      Chronic Pain

      Depression, PTSD 


  Health Insurance

      Insurance Options

      Health Care Reform

      Federal and State Programs


  Education and Employment

      Knowing Your Rights

      When to Talk About Your Cancer Experience at School or Work 

 


  Fertility

      Risks from Treatment

      Options

      Psychological Impact


  Intimacy and Sexuality

      Roots of Intimacy Issues

      Common Sex Problems after Cancer -- and Tips for Working on Them

 


  Healthy Mind, Body and Spirit

      Alternative Medicine

      Healthy Eating

      Relationships


  Transitions and Navigating Care

      Communicating with Doctors

      Transitioning from Pediatric to Adult Care

 


  Childhood Cancer Advocacy

      Types of Advocacy

      Basic Advocacy Elements

      Why Be An Advocate?

Highlighted Resources:

Alliance for Childhood Cancer

The Alliance for Childhood Cancer is a coalition of over twenty national patient advocacy groups and professional medical and scientific organizations dedicated to working together to address key policy issues related to childhood cancer.