Posts tagged survivorship
Childhood Cancer Survivor & Caregiver Challenges : Survey Results

In both 2017 and 2018, we conducted an online survey in partnership with the Patient Advocate Foundation. We heard from nearly 450 caregivers and survivors , and below we share a few key findings related to survivorship, financial hardship, and coverage challenges.

At the Children’s Cause, we’re using this data to support a variety of policy proposals and projects in the works. We thank all the families and survivors who are helping to inform our advocacy work by sharing their experiences and challenges. Your input makes us a stronger voice for our children in Washington and around the country.

Read More
Children's Cause Presents Rosen Award to Julia Rowland

The Leonard M. Rosen Memorial Research Award is presented annually at the Children’s Cause Cocktail Reception in New York City. This year, Children’s Cause was proud to present the 3rd Annual Rosen Award to Julia Rowland, MD.

As a Rosen Award recipient, Dr. Rowland receives $10,000 in recognition and support of her work. In accepting this award, she described how these funds will help support her current endeavors: “I’m hoping to use the Rosen Award funds to conduct demonstration projects at a handful of sites that will examine how this tool can be used to enhance the capacity to deliver high quality care, the ultimate goal being to improve the psycosocial care available and delivered to childhood cancer survivors and their families.”

Read More
Summer News Round-Up

We've seen a lot of really interesting headlines cross our desks in just the past week or so and wanted to share some of these with you in one place for easy digestion:

- "Some adult survivors of childhood cancer unconcerned about health"

- "Up to half of childhood cancer survivors will develop hormone disorders"

-"Meet Lola, a Girl Who Gave Her Final Days to Science"

-”Where childhood cancer hits hardest”

Read More
STAR Act Becomes Law: $30 million per year authorized to combat childhood cancer

President Donald Trump signed the Childhood Cancer STAR Act into law yesterday, June 5th, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC). 

Now, we move on to the next step in the process:  securing full funding for the STAR Act. Please join us in thanking Congress for passing STAR and in requesting that the authorized funding be fully appropriated.

Read More