Posts tagged research
Your Role in Childhood Cancer Research Funding

As advocates in the childhood cancer community know all too well, funding for research is largely dependent on federal funding from the National Cancer Institute (NCI), which supports academic researchers and much of the clinical trials infrastructure that treats and cares for our kids. 
 
The amount that NCI is able to devote to those programs – and other cancer programs -  is, in turn, dependent on what Congress determines in its annual appropriations process. And much of that is determined by how hard advocates - like you – push their members of Congress to make it a priority.

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Childhood Cancer Survivor & Caregiver Challenges : Survey Results

In both 2017 and 2018, we conducted an online survey in partnership with the Patient Advocate Foundation. We heard from nearly 450 caregivers and survivors , and below we share a few key findings related to survivorship, financial hardship, and coverage challenges.

At the Children’s Cause, we’re using this data to support a variety of policy proposals and projects in the works. We thank all the families and survivors who are helping to inform our advocacy work by sharing their experiences and challenges. Your input makes us a stronger voice for our children in Washington and around the country.

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Children's Cause Presents Rosen Award to Julia Rowland

The Leonard M. Rosen Memorial Research Award is presented annually at the Children’s Cause Cocktail Reception in New York City. This year, Children’s Cause was proud to present the 3rd Annual Rosen Award to Julia Rowland, MD.

As a Rosen Award recipient, Dr. Rowland receives $10,000 in recognition and support of her work. In accepting this award, she described how these funds will help support her current endeavors: “I’m hoping to use the Rosen Award funds to conduct demonstration projects at a handful of sites that will examine how this tool can be used to enhance the capacity to deliver high quality care, the ultimate goal being to improve the psycosocial care available and delivered to childhood cancer survivors and their families.”

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Childhood Cancer Awareness Month : Updates from Washington

As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.

Among the highlights:

  • Externally-Led Patient Focused Drug Development Meeting

  • Congressional Childhood Cancer Summit on Capitol Hill

  • CureFest

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STAR Act Becomes Law: $30 million per year authorized to combat childhood cancer

President Donald Trump signed the Childhood Cancer STAR Act into law yesterday, June 5th, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC). 

Now, we move on to the next step in the process:  securing full funding for the STAR Act. Please join us in thanking Congress for passing STAR and in requesting that the authorized funding be fully appropriated.

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