Children’s Cause hosted a webinar in late June to provide childhood cancer advocates with an advocacy update, now that the 116th Congress has been in session for six months. The webinar covered where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including research funding, implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care. On the latter issue, our webinar covered Passport for Care as a model program that has demonstrated success in the area of transitioning from active treatment to long-term survivorship care.Read More
There’s no shortage of issues that need fixing and the first instinct for many childhood cancer advocates is to look to Washington. But many issues affecting children with cancer and their families are best addressed, with more impact, at the state and local level.
Fortunately, there are scores of childhood cancer advocates working in state capitals, pushing for better treatments, access and care for patients, families and survivors. Unfortunately, they’re often working alone or with limited resources. To support those advocates, Children’s Cause has launched a state advocacy program offering “air cover” and coordination to those working in their state capitals…Read More
President Donald Trump signed the Childhood Cancer STAR Act into law yesterday, June 5th, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC).
Now, we move on to the next step in the process: securing full funding for the STAR Act. Please join us in thanking Congress for passing STAR and in requesting that the authorized funding be fully appropriated.Read More