Posts tagged STAR Act
Childhood Cancer Awareness Month : Updates from Washington

As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.

Among the highlights:

  • Externally-Led Patient Focused Drug Development Meeting

  • Congressional Childhood Cancer Summit on Capitol Hill

  • CureFest

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STAR Act Funding Update

The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House. 

House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.

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Are you meeting with your Representative this August?

While the Senate will be back in session after their quick break, House members will still have the full month off, through Labor Day. And it's an election year for all of them, so they'll be working overtime to be accessible to constituents like you. If you're willing to try to meet with your Representative in August about childhood cancer issues, here are a few tips…

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Authorization to Appropriation: Next Steps for STAR Act

Earlier this month, President Donald Trump signed the Childhood Cancer STAR Act into law, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC). 

Now, we work to get the STAR Act fully funded -- and all indications suggest this process is off to a good start! On Thursday, the Senate Appropriations Committee approved a fiscal year 2019 spending bill that includes funding for implementation of STAR.

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WATERSHED MOMENT: Congress passes the STAR Act!

BREAKING NEWS: The House of Representatives just passed the most comprehensive childhood cancer legislation ever introduced. The Childhood Cancer STAR Act now heads to President Trump to be signed into law!

We thank our champions on Capitol Hill for leading the way toward this huge milestone for our community, and we thank each and every one of you who've reached out to your Members of Congress over the past few months -- and years!

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Tips for Town Halls while Congress is in Recess

Through the first full week of April. If you're interested in meeting with your Congressional representatives about childhood cancer issues - or anything else - these district work periods are ideal times to find your Senators and Representative somewhere near you!

If you'd like to meet with your Member of Congress while they're home next week to share your childhood cancer story, here's a good place to start: CCCA's Guide to Congressional District Office Visits...

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