Children’s Cause hosted a webinar in late June to provide childhood cancer advocates with an advocacy update, now that the 116th Congress has been in session for six months. The webinar covered where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including research funding, implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care. On the latter issue, our webinar covered Passport for Care as a model program that has demonstrated success in the area of transitioning from active treatment to long-term survivorship care.Read More
As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.
Among the highlights:
Externally-Led Patient Focused Drug Development Meeting
Congressional Childhood Cancer Summit on Capitol Hill
The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House.
House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.Read More
While the Senate will be back in session after their quick break, House members will still have the full month off, through Labor Day. And it's an election year for all of them, so they'll be working overtime to be accessible to constituents like you. If you're willing to try to meet with your Representative in August about childhood cancer issues, here are a few tips…Read More
Earlier this month, President Donald Trump signed the Childhood Cancer STAR Act into law, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC).
Now, we work to get the STAR Act fully funded -- and all indications suggest this process is off to a good start! On Thursday, the Senate Appropriations Committee approved a fiscal year 2019 spending bill that includes funding for implementation of STAR.
BREAKING NEWS: The House of Representatives just passed the most comprehensive childhood cancer legislation ever introduced. The Childhood Cancer STAR Act now heads to President Trump to be signed into law!
We thank our champions on Capitol Hill for leading the way toward this huge milestone for our community, and we thank each and every one of you who've reached out to your Members of Congress over the past few months -- and years!Read More