Posts tagged NIH
Easter Recess, NCI Funding, and You:

Members of Congress are back home for a two-week district work period -- also known as Easter Recess. If you're interested in meeting with your Congressional representatives about childhood cancer issues, this is an ideal time to find your Senators and Representative somewhere near you!

When Congress returns to Washington at the end of April, they will resume budget talks for fiscal year 2020. So now is the time to emphasize to your Senators and Representative the life-saving importance of robust funding for the NCI.

Read More
Childhood Cancer Awareness Month : Updates from Washington

As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.

Among the highlights:

  • Externally-Led Patient Focused Drug Development Meeting

  • Congressional Childhood Cancer Summit on Capitol Hill

  • CureFest

Read More
STAR Act Becomes Law: $30 million per year authorized to combat childhood cancer

President Donald Trump signed the Childhood Cancer STAR Act into law yesterday, June 5th, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC). 

Now, we move on to the next step in the process:  securing full funding for the STAR Act. Please join us in thanking Congress for passing STAR and in requesting that the authorized funding be fully appropriated.

Read More
Rescission Watch: Take action to protect cancer research funding!

We joined with other research advocates to thank Congressional appropriations leaders for securing an unprecedented $3 billion increase in NIH funding as part of the FY2018 omnibus spending bill. This boost to medical research funding comes at a critical time, as advances in precision medicine hold the key to more children surviving and thriving after a cancer diagnosis than ever before.

But then, we started hearing a term called 'rescission' thrown around in Washington. An appropriations process that we had celebrated as a victory for medical research suddenly started to sound not-so-final. 

Read More
Breaking down the Budget: Implications on Public Health

For those of us in the childhood cancer community desperate for new treatments, one of the most important resources is the National Cancer Institute (NCI). The vast majority of childhood cancer research is funded by the NCI, which provides grants to researchers and supports cooperative groups that test new treatments in clinical trials. While Congress doesn't determine the exact amount of funding NCI will spend on pediatric research, a rising tide of funding will ensure that more is dedicated to childhood cancer research. That's why it's critical that we impress upon our representatives the urgency of NCI funding...

Read More