Children’s Cause hosted a webinar in late June to provide childhood cancer advocates with an advocacy update, now that the 116th Congress has been in session for six months. The webinar covered where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including research funding, implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care. On the latter issue, our webinar covered Passport for Care as a model program that has demonstrated success in the area of transitioning from active treatment to long-term survivorship care.Read More
When Pediatric MATCH launched in 2017, it was estimated that there would be a match rate of about 10 percent, meaning one-in-ten participants were expected to be eligible to receive treatment with at least one drug. Early results, however, are much more promising: An analysis of 400 patients screened reveals a match rate of 24 percent.Read More
As advocates in the childhood cancer community know all too well, funding for research is largely dependent on federal funding from the National Cancer Institute (NCI), which supports academic researchers and much of the clinical trials infrastructure that treats and cares for our kids.
The amount that NCI is able to devote to those programs – and other cancer programs - is, in turn, dependent on what Congress determines in its annual appropriations process. And much of that is determined by how hard advocates - like you – push their members of Congress to make it a priority.
Members of Congress are back home for a two-week district work period -- also known as Easter Recess. If you're interested in meeting with your Congressional representatives about childhood cancer issues, this is an ideal time to find your Senators and Representative somewhere near you!
When Congress returns to Washington at the end of April, they will resume budget talks for fiscal year 2020. So now is the time to emphasize to your Senators and Representative the life-saving importance of robust funding for the NCI.Read More
Last month childhood cancer advocates were encouraged – and somewhat surprised – when President Trump announced a childhood cancer research initiative at the State of the Union address, proposed at some $500 million over ten years – or $50 million a year.
The promise of that extra funding and any new initiatives was thrown into doubt this week with the release of the Administration’s budget proposal. It recommended that the National Cancer Institute (NCI) be cut by 17% or $897 million; theoretically dwarfing any increase in childhood cancer funding.Read More
Cancer is the leading cause of death from disease among children and adolescents in the United States. Although substantial progress has been made in the treatment of several types of childhood cancer over the past five decades, progress against other types has been limited.
With your help, we can continue to make our children with cancer a priority for research funding during Cancer Research Month and all year long.Read More