Children’s Cause hosted a webinar in late June to provide childhood cancer advocates with an advocacy update, now that the 116th Congress has been in session for six months. The webinar covered where things stand with various pieces of legislation that could impact children with cancer and childhood cancer survivors, including research funding, implementation of the STAR Act and ACE Kids Act, progress of the CLINICAL TREATMENT Act, and a survivorship initiative in the works that focuses on transitions of care. On the latter issue, our webinar covered Passport for Care as a model program that has demonstrated success in the area of transitioning from active treatment to long-term survivorship care.Read More
The kick-off of the 116th Congress has been overshadowed by the drama of the ongoing government shutdown. But that doesn’t mean Washington has come to a complete standstill, and neither have we. We’ve been busy working on our policy agenda for this Congress and we’ll have action alerts on legislation as it gets introduced.
For now, we ask that you take moment to introduce yourself to your Members of Congress and share with them your childhood cancer story.Read More
The House of Representatives passed the ACE Kids Act on December 11th!
Now, we push for passage of its companion legislation (S.428) in the Senate before this legislative session comes to a close.
Please join us by sending a letter to your Senators:Read More
We are busy following the final days of the 115th Congress — and also preparing for the new Congress, which begins on January 3rd. There’s a lot of behind-the-scenes maneuvering happening in Washington right now, as new leaders and committee chairs are selected. And there’s literal maneuvering as office spaces transition to make way for incoming occupants.
We know everyone is so busy in December but we wanted to share a couple of ways that you can help make a difference with some easy advocacy this holiday season:Read More
The 2018 midterm elections have implications for children with cancer at both the federal and state levels. The write up below explores these issues in more detail.
With a divided Congress, health policy initiatives will require bipartisan action which means uncontroversial authorizing legislation and bipartisan efforts on bills.Read More
The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House.
House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.Read More