Results were presented at this month’s ASCO Quality Care Symposium from a joint survey conducted last year by the Children's Cause and the Patient Advocate Foundation (PAF). The survey sought to identify financial challenges in access to care, such as insurance barriers, coverage limitations and denials, high copays and extraordinary out-of-pocket costs.Read More
As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.
Among the highlights:
Externally-Led Patient Focused Drug Development Meeting
Congressional Childhood Cancer Summit on Capitol Hill
The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House.
House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.Read More
With just two weeks to go, we are busy gearing up for Childhood Cancer Awareness Month! We are working overtime to ensure that when the calendar flips over to September, we are strongly positioned to boost awareness efforts and mobilize for maximum advocacy impact.
Two of our current projects can't wait until September to share. We want to be sure every childhood cancer caregiver and survivor knows about these two opportunities to strengthen our community:Read More
Nicole writes: As my time in DC comes to a close, I'm reflecting on all the amazing adventures I've gotten to experience this summer. I had the ability to become a long-term tourist in DC, which has granted me so many terrific opportunities: beautiful morning runs through all the monuments; exploring the many museums; watching Ferris Bueller’s Day Off at Lafayette Park; cheering on the Washington Nationals; and playing kickball on the Mall with my fellow classmates.Read More
While the Senate will be back in session after their quick break, House members will still have the full month off, through Labor Day. And it's an election year for all of them, so they'll be working overtime to be accessible to constituents like you. If you're willing to try to meet with your Representative in August about childhood cancer issues, here are a few tips…Read More