Posts in Advocacy
Calling all advocates -- to the states!

There’s no shortage of issues that need fixing and the first instinct for many childhood cancer advocates is to look to Washington.  But many issues affecting children with cancer and their families are best addressed, with more impact, at the state and local level.  

Fortunately, there are scores of childhood cancer advocates working in state capitals, pushing for better treatments, access and care for patients, families and survivors.  Unfortunately, they’re often working alone or with limited resources.  To support those advocates, Children’s Cause has launched a state advocacy program offering “air cover” and coordination to those working in their state capitals…

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Shutdown's Impact on the FDA

The ongoing partial government shutdown is now the longest in U.S. history, with no certain end in sight. While the impact of the shutdown is wide and far-reaching, at the Children’s Cause we are focused on the Food and Drug Administration, an agency that has a direct impact on the development of life-saving therapies for our kids.

FDA Commissioner Scott Gottlieb, MD, has stated that the agency will run out of drug approval funds sometime in February if the shutdown continues.

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A Congress in Transition: Updates from Washington

We are busy following the final days of the 115th Congress — and also preparing for the new Congress, which begins on January 3rd. There’s a lot of behind-the-scenes maneuvering happening in Washington right now, as new leaders and committee chairs are selected. And there’s literal maneuvering as office spaces transition to make way for incoming occupants.

We know everyone is so busy in December but we wanted to share a couple of ways that you can help make a difference with some easy advocacy this holiday season:

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2018 Midterm Elections: The Childhood Cancer Landscape

The 2018 midterm elections have implications for children with cancer at both the federal and state levels.  The write up below explores these issues in more detail. 

With a divided Congress, health policy initiatives will require bipartisan action which means uncontroversial authorizing legislation and bipartisan efforts on bills. 

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STAR Act Funding Update

The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House. 

House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.

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Are you meeting with your Representative this August?

While the Senate will be back in session after their quick break, House members will still have the full month off, through Labor Day. And it's an election year for all of them, so they'll be working overtime to be accessible to constituents like you. If you're willing to try to meet with your Representative in August about childhood cancer issues, here are a few tips…

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