STAR Act Funding Update


UPDATE: On August 23rd, the Senate included funding for STAR in their FY2019 LHHS bill, which also includes a $2 billion funding increase for the NIH. Please join us, below, in asking your Representative in the House to follow suit by fully appropriating the authorized funds. 

The Alliance for Childhood Cancer updated the community this week on the status of STAR Act appropriations funding, and we want to pass along some of the highlights.

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As a reminder, the Survivorship, Treatment, Access and Research Act was signed into law in early June, authorizing $30 million annually from 2019-2023 for programs and research to combat childhood cancer through the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC). But in order to fully enact the provisions within the STAR Act, it requires full funding -- which has been a top priority of the Alliance, Children's Cause and our other advocacy partners in the community this summer.

The Senate Appropriations Committee acted quickly, including the NIH and CDC funding necessary to implement STAR in their fiscal year 2019 spending bill passed in June. That health appropriations bill is being debated by the full Senate this week, and we expect the STAR funding to remain intact. 

The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House. 

House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act. You can help make that happen by reaching out to your Representative about the importance of fully funding STAR. We have an action alert below that makes it easy to reach out!

Also: If you have (or already had!) the opportunity to meet with your Member of Congress while they are home on recess, we'd love to hear about your meeting or conversation. This information will remain confidential and serves to help us improve our advocacy and refine our own work with these offices.