Childhood Cancer Awareness Month : Updates from Washington

As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.

Among the highlights:

  • Externally-Led Patient Focused Drug Development Meeting

  • Congressional Childhood Cancer Summit on Capitol Hill

  • CureFest

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STAR Act Funding Update

The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House. 

House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.

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2 New Things We Want Every Childhood Cancer Family to Know About:

With just two weeks to go, we are busy gearing up for Childhood Cancer Awareness Month! We are working overtime to ensure that when the calendar flips over to September, we are strongly positioned to boost awareness efforts and mobilize for maximum advocacy impact.

Two of our current projects can't wait until September to share. We want to be sure every childhood cancer caregiver and survivor knows about these two opportunities to strengthen our community:

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Our Summer Intern's Final Thoughts

Nicole writes: As my time in DC comes to a close, I'm reflecting on all the amazing adventures I've gotten to experience this summer. I had the ability to become a long-term tourist in DC, which has granted me so many terrific opportunities:  beautiful morning runs through all the monuments; exploring the many museums; watching Ferris Bueller’s Day Off at Lafayette Park; cheering on the Washington Nationals; and playing kickball on the Mall with my fellow classmates.

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Jessica Keanintern, summer
Are you meeting with your Representative this August?

While the Senate will be back in session after their quick break, House members will still have the full month off, through Labor Day. And it's an election year for all of them, so they'll be working overtime to be accessible to constituents like you. If you're willing to try to meet with your Representative in August about childhood cancer issues, here are a few tips…

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Lessons Learned in DC: Our Intern's Mid-Summer Update

As I have just passed the halfway point of my internship at Children’s Cause for Cancer Advocacy, I have begun to realize how instrumental the projects I have worked on this summer will be in pursuit of my future aspirations.

I have had the unique ability, thanks to all those that work at CCCA, to view current oncologists in a unique lighting in comparison to my other classmates. I’ve spent the majority of my summer with those who critique the healthcare system and doctors the most. Due to experiencing the healthcare system in this unique way, I have gained some insights that shadowing doctors could have never taught me:

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