2018 Midterm Elections: The Childhood Cancer Landscape

The 2018 midterm elections have implications for children with cancer at both the federal and state levels.  The write up below explores these issues in more detail. 

With a divided Congress, health policy initiatives will require bipartisan action which means uncontroversial authorizing legislation and bipartisan efforts on bills. 

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Children's Cause Presents Rosen Award to Julia Rowland

The Leonard M. Rosen Memorial Research Award is presented annually at the Children’s Cause Cocktail Reception in New York City. This year, Children’s Cause was proud to present the 3rd Annual Rosen Award to Julia Rowland, MD.

As a Rosen Award recipient, Dr. Rowland receives $10,000 in recognition and support of her work. In accepting this award, she described how these funds will help support her current endeavors: “I’m hoping to use the Rosen Award funds to conduct demonstration projects at a handful of sites that will examine how this tool can be used to enhance the capacity to deliver high quality care, the ultimate goal being to improve the psycosocial care available and delivered to childhood cancer survivors and their families.”

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Managing the Financial Stress of Childhood Cancer

Results were presented at this month’s ASCO Quality Care Symposium from a joint survey conducted last year by the Children's Cause and the Patient Advocate Foundation (PAF). The survey sought to identify financial challenges in access to care, such as insurance barriers, coverage limitations and denials, high copays and extraordinary out-of-pocket costs.

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Childhood Cancer Awareness Month : Updates from Washington

As Childhood Cancer Awareness Month continues, we bring you a round-up of some of the biggest moments so far. Last week, the childhood cancer community came together in Washington, DC, for a series of powerful, action-oriented events.

Among the highlights:

  • Externally-Led Patient Focused Drug Development Meeting

  • Congressional Childhood Cancer Summit on Capitol Hill

  • CureFest

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STAR Act Funding Update

The House is currently in recess but will return to DC immediately after Labor Day, when they will resume appropriations work. The Alliance reports that our childhood cancer champions on Capitol Hill have been working with House Appropriations Leadership about funding the STAR Act in the final bill taken up by the full House. 

House and Senate versions of the appropriations bills must then be "conferenced" to reach consensus on a final bill that goes to the president. Our goal is to ensure that the House agrees to the Senate funding for the STAR Act.

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2 New Things We Want Every Childhood Cancer Family to Know About:

With just two weeks to go, we are busy gearing up for Childhood Cancer Awareness Month! We are working overtime to ensure that when the calendar flips over to September, we are strongly positioned to boost awareness efforts and mobilize for maximum advocacy impact.

Two of our current projects can't wait until September to share. We want to be sure every childhood cancer caregiver and survivor knows about these two opportunities to strengthen our community:

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