Grassroots Action Center
Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act of 2011
Become an advocate in 3 simple steps:
1. Find your Representative's info using tool below.
2. Write your Representative and ask them to support this important legislation. Please share your personal story for maximum impact.
3. Send!
TIP: You can usually find a "Contact Me" button on the Member's website, which will allow you to send them the letter by email or an electronic form!
About H.R.3015 / S.1613 --
The Pediatric, Adolescent and Young Adult Cancer Survivorship Research and Quality of Life Act of 2011 marks a critical step forward in the delivery of medical and psychosocial care to survivors of childhood cancer.
In 1960, only four percent of children with cancer survived more than five years, compared to an eighty percent five-year survival rate today. Two-thirds of the 300,000 childhood cancer survivors in the United States are likely to suffer from at least one late effect of treatment, and one-fourth will have a late effect that is serious or life-threatening.
The Pediatric, Adolescent and Young Adult Cancer Survivorship Research and Quality of Life Act of 2011 will:
- Respond to the Institute of Medicine report “Childhood Cancer Survivorship: Improving Care and Quality of Life,” on the need to improve systems of follow-up care, methods of transition to adult care and quality of life for pediatric cancer survivors with special attention to the needs of low income and minority survivors;
- Develop pilot programs to evaluate model systems of care and identify the most effective ways to provide follow-up care to childhood cancer survivors;
- Improve survivors’ quality of life through late effects clinics and research to ensure that the late effects of new therapies can be followed effectively; and
- Convene a workforce of educators, advocates and providers to develop models in relevant psychosocial services, establish curricula for continuing education, and strengthen the emphasis on psychosocial care for childhood cancer survivors.