Background
On March 23, 2010, comprehensive health care reform legislation was signed into law by the President. The Patient Protection and Affordable Care Act (PPACA) contains several provisions of importance to children with and surviving childhood cancer. In April, 2009, Children’s Cause for Cancer Advocacy (CCCA) released Principles for Health Care Reform outlining key recommendations for inclusion in the health care reform law. CCCA actively advocated on Capitol Hill and in the private sector for reform of the nation’s health care system so that children with cancer and childhood cancer survivors could receive quality, comprehensive care.
Legislation
The Patient Protection and Affordable Care Act (H.R.3590) establishes safeguards and enhances access to care for children with and surviving childhood cancer. Select provisions of the law are outlined below.
CCCA Role
In addition to promoting its Principles on Health Care Reform and advocating for key provisions prior to the passage of the law, CCCA monitors and comments on the implementation process of PPACA as federal agencies implement the health care reform law. CCCA has provided many updates on health care reform to advocates and others through its e-Newsletter. After careful analysis, CCCA has joined other cancer advocacy groups by signing letters on a range of policy issues related to the law’s implementation. For example, CCCA has signed various letters regarding the establishment of the health care exchanges, coverage of preventive benefits, and on the dependent coverage provisions. Prior to endorsement of a position, CCCA considers the direct implications for children with cancer and their families.