Susan Weiner, PhD, president and founder of the Children's Cause, was honored to be invited to Washington this week for a round-table discussion on precision medicine and a ceremony at the White House. Susan was the sole childhood cancer advocate in a session at the round-table focused on how the FDA plans to reconfigure its evaluation of new therapies in response to advances in precision medicine.
We are excited that the Administration has chosen to focus its short-term precision medicine goals around progress in cancer. The Pediatric MATCH Trial is an example of a precision medicine initiative with great potential to benefit children with cancer. [See our June newsletter for an update on Pediatric MATCH.]
At the White House "Champions of Change" ceremony, nine individuals were honored for their role in advancing the field of precision medicine, including childhood cancer advocate Amanda Haddock, president of the Dragon Master Foundation and parent of a teenager who died of a brain tumor in 2012.
The White House also released a new Precision Medicine Fact Sheet this week, which outlines new commitments - by the Administration and by the private sector - to the Initiative.
What others are saying about the White House event:
President Obama announced the Precision Medicine Initiative in his January State of the Union Address, to “bring us closer to curing diseases like cancer and diabetes – and to give all of us access to the personalized information we need to keep ourselves and our families healthier.” The president's fiscal year 2016 budget seeks $215 million for the initiative, including $130 million for the NIH to develop a million-man voluntary research cohort and $70 million for the NCI to ramp up research into genomic causes of cancer.
The first hour of the event can be seen here: