IOM Workshop Findings Support Need for Survivorship Care Legislation

We were pleased to read the recent report from the Institute of Medicine's workshop on "Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer."  The summary out of the workshop confirms that adolescents and young adults need access to services targeted to their specific age group and stages in life.  We commend the IOM and LIVESTRONG for convening this workshop and paying the special attention needed to meet the needs of AYA's with cancer and survivors! cover

Among the recommendations of the workshop, were the following:

  • Improving transition to survivorship care;
  • Expanding research into survivorship care for childhood cancer survivors; and
  • Enhancing health professional workforce training in psychosocial care for survivors.

These, and other points of action addressed at the workshop, further confirm the need to promote health care policies that facilitate survivorship care and research.  That is why we are proud to support the Childhood Cancer Survivors' Quality of Life Act now pending before Congress, which would take many steps towards improving care for childhood and adolescent cancer survivors.

Take action now and urge your Member of Congress to cosponsor HR 2058/ S 1247, the Childhood Cancer Survivors' Quality of Life Act! Click here send a letter.

Adolescent and young adult cancer was also the focus of a conference held earlier this month in Cleveland, hosted by Critical Mass. The "Connecting the Dots" annual conference brought together approximately 170 organization representatives and stakeholders from around the country to discuss current issues and new developments in the field of adolescent and young adult oncology. About 70,000 adolescents and young adults between the ages of 15-39 are diagnosed with cancer every year. Read more about the pediatric and young adult cancer landscape - and related events this month - in this article from the Cleveland Plain Dealer.