The issue of "financial toxicity" as a side effect of a cancer diagnosis has been gaining much-needed attention in recent months (like this story in Stat that found 1/3 of patients have to borrow from family or friends, or this one in the Washington Post about cancer patients filing bankruptcy). But its impact on childhood cancer families still leaves much to be explored in order to find solutions to alleviate the heavy financial toll of a cancer diagnosis. We're taking on this issue, and we need you to be part of the conversation!
We've got two upcoming opportunities for you to a) weigh in or b) learn more about the financial barriers that impact access to care and quality of life for families faced with a childhood cancer diagnosis and for survivors entering young adulthood.
WEIGH IN THROUGH OUR SURVEY -- In collaboration with the Patient Advocate Foundation, we launched a new survey this week of childhood cancer families, patients and survivors.
Survey responses will provide invaluable insight into understanding many of the common problems and healthcare barriers patients encounter. This survey is intended to capture the experience and challenges of families like yours so that we can express those to decision-makers and the medical community.
The survey should take no longer than 10 minutes -- but we know your time is valuable: In addition to helping us be a stronger voice for families in our community, eligible survey-takers will be entered in a weekly drawing to win a $100 Amazon gift card!
LAUNCH SURVEY HERE: http://tinyurl.com/PAFCCCAPedsSurvey
LEARN MORE IN AN UPCOMING WEBINAR: On Friday, April 28th, we'll be joined by academic researchers Anne Kirchhoff, PhD, MPH and Kira Bona, MD, MPH in a discussion about challenges and opportunities facing childhood cancer advocates in our efforts to decrease financial barriers and expand access to affordable cancer care for families with a child battling cancer.
Join us at 3pm Eastern as we start to explore what we as policy advocates can do to work toward effective solutions to lessen the financial burden on families in our community.