Childhood Cancer Action Day in Washington, DC

June 1, 2012

Ask Congress to Support Childhood Cancer Issues

With Congress poised to pass sweeping FDA reform, childhood cancer advocates visiting Capitol Hill next week in conjunction with Childhood Cancer Action Day are doing so at an especially critical time to present the following issues to legislators:

New and more effective drugs for children with cancer – Helping to improve and accelerate access to life saving treatments is one of several pediatric drug development provisions included in FDA Reform Act of 2012, which is currently making its way through Congress. For complete details about the asks advocates are making, click here.
Improved treatments for childhood cancer survivors - With more than 350,000 young cancer survivors living in the U.S., and three-fourths of them suffering a chronic condition or late-effect from their cancer treatments, better programs are needed for their follow-up care, psychosocial services, and adjustment to adult life as outlined in The Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act.
Encouraging members of Congress to work together to help kids with cancer by encouraging House members to join the Congressional Childhood Cancer Caucus, a bipartisan group working to improve the lives of children with cancer.

You can support this effort by sending a message to your members of Congress using the form below (and ask your family, friends, and colleagues to do the same).

Let’s work together to send thousands of messages to Capitol Hill on behalf of the 13,500 children who are diagnosed with cancer each year in the United States.

On behalf of Children's Cause for Cancer Advocacy and the Alliance for Childhood Cancer, thank you for your support!

About the Alliance for Childhood Cancer

Founded in 2001, the Alliance for Childhood Cancer is a forum of national patient advocacy groups, and medical and scientific organizations. These organizations meet regularly in Washington DC to share ideas and concerns and work collaboratively to advance policies leading to improved research, public education, and diagnosis, treatment, supportive care and survivorship for children and adolescents with cancer.

Members of the Alliance for Childhood Cancer include:

American Academy of Pediatrics Children's Brain Tumor Foundation
American Cancer Society Children's Cause for Cancer Advocacy
American Childhood Cancer Organization Children's Oncology Group
American Pediatric Surgical Association CureSearch National Childhood Cancer
American Psychological Association Foundation/Hope Street Kids
American Society for Radiation Oncology Lance Armstrong Foundation
American Society of Clinical Oncology Leukemia & Lymphoma Society
American Society of Pediatric Hematology/Oncology National Children's Cancer Society
Association of Pediatric Hematology-Oncology Nurses National Coalition for Cancer Survivorship
Association of Pediatric Oncology Social Workers Patient Advocate Foundation
B+ Foundation Pediatric Brain Tumor Foundation
Cancer Support Community Sarcoma Foundation of America
Chai Lifeline Society of Pediatric Psychology
St. Baldrick's Foundation

Name: *

You may elect to add your personal story in the Message box.

E-Mail: *

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Telephone: *

Message To Send:

Dear Senator/Representative:

On Tuesday, June 5, 250 advocates will visit Capitol Hill during Childhood Cancer Action Days. As a constituent who cares about children with cancer, I urge you to meet with advocates who visit your office and support the issues they present, including:

-- New and more effective drugs for children with cancer:  Helping to improve and accelerate access to life saving treatments is one of several pediatric drug development provisions included in FDA Reform Act of 2012 (also known as the FDA Safety and Innovation Act), which is currently making its way through Congress.
-- Improved treatments for childhood cancer survivors: With more than 350,000 young cancer survivors living in the U.S., and three-fourths of them suffering a chronic condition or late-effect from their cancer treatments, better programs are needed for their follow-up care, psychosocial services, and adjustment to adult life as outlined in The Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act.
-- Encouraging members of Congress to work together to help kids with cancer by encouraging House members to join the Congressional Childhood Cancer Caucus, a bipartisan group working to improve the lives of children with cancer.

Childhood cancer is the #1 disease killer of children in the United States, with more than 13,500 children diagnosed with this disease every year in our country.

I hope I can count on you to support these issues and give children with cancer the support they need and deserve.

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Ask Congress to Support Childhood Cancer Issues